Jan. 17. 2012

Well its been a few days since I have posted...  Korbins ostomy bag has came off in the night 3 nights in a row now! Its been very frustrating! Yes I have hit the point of being totally frazzled, but I just keep moving on. Korbin has been such an encouragement to me through all this!! Hes the one going through all the pain and he has not complained about it! I know it has bothered him, however he just laughs when the dr ask him if he hurts anywhere!
Tomorrow Korbin will have his first day back to school! He will only go for the morning. I am really nervous but excited for him! He is very excited to see his lil friends he has missed them so much!!
Being Korbins Mom has taught me alot of new things, specailly that I can do "nursing skills". Its been an intreasting ride learning all the medical stuff I have learned, and to hear Korbin us the big medical words is neat to! He really knows whats going on with his lil body he is so smart!
Please pray his stoma ( ostomy site) will not hurt and he will have a good day at school tomrrow. Also pray as we approch Feb 6 that his lil "pipes" will be healed and he will be able to have the next surgery.
One more request please pray for me as I have started back to school full  time today, my work load  is heavy this sesemster. I am very excited tho because it is "group therapy and theory of counsling" classes! Just getting closer to being a counsler! :)

This picture is at the McDonalds in Milwaukee, and Korbin said "mommy look  juicebox"

Jan 13 2012

Goodness that was a “quick trip” to Milwaukee.

 This last week Korbins stoma ( the place that they made for him to have the ostomy bag) has been bleeding.  He has had a very low fever of 99.9  I took him to Burlington Hospital but they wouldn’t treat him they told me to contact Milwaukee ( which I am very upset about). Luckily we already had an appt for a follow up from surgery.   So we seen Dr. Calkins on Thursday, he is such an amazing surgeon! He walks in and says “ hey korbie doodle how ya doing bubba”  He is sooooo personable!! Just really blessed to have him as our surgeon!  They did a quick “surgery” right in the office; they removed a layer of skin because korbins poop was eating way the good skin. Then they put a barrier on it, hopefully we caught it before infection set in.  Dr. Calkins said that Korb is recovering very well for everything his lil body has been through. So our next trip will be February 6, he will go in for major testing to see if his “new” colon is going to work.  IF it works and no leakage then Korb will have surgery on February 7 and they will reverse the stoma and he will no longer have the bag!!  Yes we will still have to worry about bad bacterial infection for about another month, because Korbin was exposed to so much bacteria when it leaked the first time.  But Dr. Calkins said” Korbin is a real fighter and I don’t see that happening”! J

On the way home tonight, we stopped in Monmouth and seen my brother, Korb got to have a little tractor ride, man he was soooooooooo excited! Thanks Uncle Cheesey you the best!! J

Korbin will get to start back to school this week doing half days! “YEAH!!!!!!!   He is ready to be back with his lil classmates he missed them so much!

Well I better get him tucked in for the night, he has had a very long snowy day! Thanks again for your support, love and prayers!

Jan 11 2012

Just a quick post this morning, its Jan. 11. 2012 We are getting ready to head to Milwaukee. I had Korbin in burlington ER last night because of low grade fever and bleeding around stoma. Dr. Calkins Called and wanted to check up on him and see how he was doing kinda werid how this stuff surfaced. Really frusterated with the Burlington ER they told me to just " call milwaukee and follow up with them" and " you be better of going home and changing his dressing, by the time I order it you could be home and have done it twice" AGH I have lost alot of faith in them. I will keep you posted as much as I can...
Right now.. we got to hit the road!!

Jan 4 2012

Well its been a few days since I wrote a blog….. Ever since we been home its been busy busy or trying to rest. Korbin is recovering well, he is still very tired. He has pain, but tells me he doesn’t, I can see it in his eyes, he tries to be so strong. We went to school today to see his little classmates, boy they had LOTS of questions for me after they  almost tackled Korb to the ground.. It was really neat to see them interact act with Korbin and ask the questions, they were really concerned about him!  He will start back to school next Tuesday and do half days, we will see how that goes. I am just so blessed that we are home and God has placed his healing hand upon Korbin. Please pray for all our little friends that are still at children’s hospital and Ronald McDonald House, they  have been so amazing and support of us!  Also Feb 6 We will head back to Milwaukee for another surgery. They will reverse his ostomy site, I am praying this time comes quick. Every time I change it he winds up getting sick. HOWEVER I think I had a break through tonight, I tried something different but was able to save the bag and he didn’t get sick on me!  We will try again tomorrow and see how it goes, I found out today the bags are $64 for 10 bags…  I will be trying VERY hard to save them where I can!!! I couldn’t believe how much they cost! Anyway, Just wanted to thank you so much for your support and prayers over the last few weeks, it has been bumpy ride, but we made it through  were not completely out of the woods but we are truly on a better path…

WERE HOME!!

Well we got to leave the hospital on Sunday, upon the Dr. Calkins learning that I had been changing Korbins ostomy bags and really attentive to Korbin, he said that we could go on  home and not have to stay at Ronald McDonald House.  Korbin slept very good in his own bed last night, only thing is that his ostomy bag popped off in the middle of the night.. We have spent the day over at mom's, she took Korbin for napolies, that is his most favorite and his favorite waitress was there. Were bouncing back slowly, going to take a little time, he will stay home from school this week and do half days next week. thank you for all your prayers and support!