mar 28 2011

we arrived in milwaukee yesterday we are headed over to see the dr in 15 mins... his button is VERY red!
I wish it were working for him... will see what they have to say.. ill blog later tonight when we get back to ronald mcdonald house... they have been sooo wonderful!!

heading back to milwaukee monday

well back to milwaukee we go... korbins button is not working the way its spouse too.. and he may have infection...

Here is a picture of Korbin and Grandpa Swenson, from last time we went to Milwaukee... We stopped in and see them! :)

well its been a little while since I wrote here... honestly I m pretty frustrated with this whole button thing...  korb pretty much cries the whole time he does his treatments.. he has granulation tissue around the button which makes it sore feeling.. i think he has infection, but dr says its just the tissue up on talking to milwaukee on Friday, they said, " we may just have to pull the button and sew him shut and cut the bad colon out" due to the button not healing well..  korb has been such a little trooper!  we went for a long walk yesterday with a good friend and he complained of his button hurting... Just keep praying for him, that we will have a " break through"  My ( adopted) grandma betty passed away last sunday and korb has had lots of questions for me....   after going to vistiation he had seen her in the casket we came home and .korb & I were talking about how beatiful the weather was... we get home & I had the patio door open so the beatiful breeze could come in, It was real quiet in here, so I went to find korb, he was standing at the screen whispering " Jesus, be with grandma betty she go to heaven she die...(long pause) her family ... mommy tear go away... thank u for mommy.... it be ok Jesus amen" ** tears!!! ** ♥ Korbin... so then on friday I went to the funeral and he had lots of questions still.. so this is what I came up with for him... " mommy helped grandma betty go to heaven today... we sealed the box and the pastor put a very beatiful white cloth over it then he baptized her box ( cathlic funeral)  and then he put a VERY special stamp on it.. it was a crosss... and then we " shipped it" to heaven.... ( he asked about the cars)  "

PLease keep praying for korbin.. Treatment didnt go so well tonight.. he threw up all over and his button was really leaking after he did..  I think this weekend, were going to do a bunch of nothing!!!! :) just rest and catch up...

IT WORKS!!!!

Sooooo excited!!!!! The "button" works we got "PRODUCT"!!!!!!!

Well we finally got to use the button yesterday it was pretty overwhelming for korbin
He was just soooo sure it was going to hurt so finally got him calmed down enough that we could start and then he relized wasn't so bad we got to go Jo the Milwaukee public museum if ur ever in the area u must go it was soooooo amazing!!!!
We got to go in this room and see the butterflies. And the best part they would come over and land on u korb wasn't so sure about them touching him :)

So we have had a few little set backs, but thank goodness we got through the last two weeks.  Korb has relized that jumping up and down and bending over are still a little diffcult. We leave tomorrow morning to head to milwaukee.  I am VERY excited to learn how to use the button. I just conintue to pray that this will help korbin. 

A question that everyone has been asking is how long will he have the button, well thats not such an easy answer.  In a year we will go back up and he will have another motillity study done ( where they place the sensors in his colon) and see if the button has helped stimulate his nerves in his colon. If not, then they will begin removing sections of his colon and pasting them where they need to go so korbin can use his colon.  He did say korbin may have horrible tummy aches but it will be because this is the first time that he is feeling his colon work and he may not know how to respond. I just got off the phone with the head nurse she was just checking to see how he was doing. They truly are amazing people there!